Wednesday, November 23, 2005

2nd Injection

I must be the luckiest girl in the world!
Last night I gave myself my second injection. That was around 6:00pm. Then I waited for the aches, shakes, chills and fevers to set in. And waited… and waited… and waited.
At about 10:30, I went to bed, feeling perfectly normal. I put some paracetamol beside the bed, sure that the pain would set in some time during the night. But I slept like a baby and woke up this morning feeling fine, and I’ve felt completely great all day!
I was actually a bit worried about it, wondering if something had gone wrong. But I asked my buddies on the forum (www.ronmetcalfe.com/hepcforum) and it seems that I’m just having a good week!
Apparently there are good weeks and bad weeks. Obviously, this is a good week. The sun’s shining, it’s beautiful late-spring weather, and I’m going to make the most of feeling this good.

By the way, that forum that I mentioned, I highly recommend that anyone who needs advice about Hepatitis C or treatment, go to this forum. The people there are super helpful and knowledgeable.

Saturday, November 19, 2005

Day 4 - Woohoo!

Last night I had such a good sleep. No aches, no need for painkillers. Just a wonderful sleep all the way up until 8:00 this morning. Aah, lovely.
And I've felt fantastic all day! I even went jogging. Here I was thinking jogging was going to be replaced with shuffling from now on. Yeah, I felt great today. Even my eyes are feeling better. Even my neck-stiffness has almost gone!
I have noticed strange bumps popping up on my neck, chest and legs. Some of them are itchy. But, you know, that's not too much to handle. We'll see where we go with those spots.

Friday, November 18, 2005

Day 3 - And I Feel Fine!

I had my first injection on Tuesday afternoon and now it's Friday afternoon. So it's been three days. Today has been most pleasing indeed. I woke up at 4:30am, because the pain had started. So I took a 500mg paracetamol tablet, went back to sleep, didn't wake up again until 7:00 and I've been perfectly fine all day! The only problem I have is a nagging ache in my neck, which has been there ever since the injection, oh and my eye-sockets ache today for some reason. Apart from that, today just feels like any other day!
I've heard that with Peglated Interferon you usually get two nasty peaks - one 4-6 hours after the injection (yup, I got that alright) and another at around 80 hours. If that's the case, then I could expect a nasty surprise tonight or tomorrow morning.
The paracetamols work wonders, but I worry about taking too many. At first I was over-cautious, and let the pain built up to unbearable before taking them. I'm not sure that that's the best idea, either. But I don't want to be taking them unless it's absolutely necessary.
I guess as time goes on I'll get the hang of when the best times to take them are.

Wednesday, November 16, 2005

First Injection

It’s begun. I had my first injection yesterday at 2:15pm. It was freaky. Luckily I’d read about other people’s experiences of the first time they had to inject themselves, and I’d read the instructions that came with the package, so I’d pretty much psyched myself into it by then. It’s just that poking that needle in it feels like the most unnatural thing to do to yourself.
I’m really glad my husband came along. Not only was it reassuring, but it helps to have a second pair of eyes and ears.
My nurse set up the needle and the syringe, instructed me what to do and then handed it to me. I got my flap of skin ready, aimed, and… hesitated. Immediately the nurse started barking at me, "just do it! Hurry up! Right now! Don’t stop!" I’m so glad she did that. It prevented me thinking logically, and I just did as I was told. It wasn’t so bad. I definitely felt the needle, but it was small and thin, not too painful at all. I was just as worried about squeezing the plunger. I thought I’d be able to feel the liquid squirting in, like when the dentist injects anaesthetic into your gums. That’s a nasty feeling. But I didn’t feel that part at all. Then I pulled the needle out. When the medicine started squirting back out of the hole in my skin, I realised that I was squeezing way too hard – probably because I was freaking out! Next time I’m going to let go of the skin before I remove the needle.
So that was it. Easy peasy. Now I just had to wait for the side effects to show up. The nurse said that maybe I wouldn’t have any at all. I shouldn’t have pinned my hopes on that. It was a three-hour car journey from the hospital back to my house. Hubby drove. I felt fine. Just before we arrived home I was starting to feel a bit achy –I thought it might be just from sitting in the car. But then other stuff started happening. When we arrived home, my mother greeted us (I’d left my mother watching over my house. I have a home-based business and customers can turn up at any time, so someone needed to be there). The first thing my mother said when I got out of the car was that I was shivering. It was a beautiful sunny evening and nobody else seemed cold.
The second thing she said was that she’d taken all the eggs out of the hen’s nest and put them in the fridge. That was very bad news. The chicks had just started hatching that morning, and I had asked my mother not to go near the nest.
Now, that news in itself doesn’t really relate to the subject of my blog, but the way I reacted does: Usually when my mother does that kind of thing, I get very tense and feel anger welling up inside me, and I feel like my head’s going to explode. This time all I felt was a serene calmness. I felt like I was floating, detached from the situation. I heard my voice, in a calm tone, tell my mother that I had asked her to leave the nest alone. I don’t even recall what she said back. It just didn’t matter. Hubby and I went inside and took the poor, refrigerated eggs and put them back in the nest. Who knows if they’ll survive.
By 6:30pm I was starting to feel really bad. Every joint ached, even my elbows. Even my toes. I was starting to develop a fierce headache. I knew I needed to eat something before I took my pills, but I struggled to gag down a banana sandwich. At about 7pm I took my first two Ribavirin tablets. I’ll be taking two of those every night and two every morning. I’ll be having my injection of Interferon once a week. That’s a piece of good news. I thought I would be having it three times a week. But it’s the Pegylated Interferon, so I only need to do it once a week. Yay.
I wanted to hold out as long as I could before taking any painkillers. Bad decision. By about 8:00 all I could do was lie on the couch and moan. I hurt so bad I could hardly move. I felt dizzy and exhausted, but I knew I wouldn’t sleep if I went to bed in that state. At that point I took some paracetamol and went upstairs and cried my eyes out. I know crying’s one of the side-effects, but I don’t think it’s meant to start happening so soon in the game! I think I was just sick and scared and I felt kind of guilty that I hadn’t managed it better (by taking painkillers before the pain got too bad).
Anyway, after about 20 minutes I felt the first 500mg of paracetamol kicking in. The pain was greatly relieved. I took another 500mg at 9pm, just to knock the rest of the pain off, and went to bed. It was a fitful night. Every sound jolted me awake. But I did sleep. I woke up about 7:30 this morning with a thumping headache, popped another paracetamol and things were looking rosy. The rest of the day has been great a great relief. I've been feeling pretty well! I still have some aching, a slight headache and a new thing - blocked ears. But basically, I feel pretty OK!
So far so good...

Monday, November 07, 2005

Week -1 (that's negative one)

So I've got one more week to go before my first injection. I'm feeling positive about it. Especially now that I've got a few clues about what to expect, thanks to some useful info from people who have been thorugh it. Sounds like it doesn't hurt too much, it's not impossible to do-it-yourself, and you don't drop dead immediately afterwards.
Today I had to go back to the lab for another blood test. I only went in a few days ago for what was supposed to be the last one before treatment begins, but the nurse phoned to say she'd forgotten to get me tested for pregnancy and "viral load". Hmm... a couple of fairly important things, you'd think. Oh well, at least she remembered in time.
Another issue that's been running through my mind lately is how, or if, I'm going to tell people about what's going on with me. Not everybody has to know, but I'm thinking if any friends turn up to visit it could be tricky (I live in the middle of nowhere so when friends turn up they stay for a week).

Sunday, November 06, 2005

Found a Useful Message Board

Yesterday I was reading some posts on this really useful Hepatitis C message board that I found by following a link on Ron Metcalfe's blog.
The posts I found really interesting were from people who have finished the treatment and are now virus free and it got me really excited about my own prospects. I look forward to the day that I'm free of the virus! Free free free!!
I've made a list of all the health problems that I have which I think might be linked to Hepatitis C, so one day when it's finally gone, I can compare.
What's really got me excited is reading about people getting rid of the brain fog and being able to concentrate again! I hate brain fog. Roll on the day that my brain feels clear and fresh.
In the meantime, I'm looking forward to reading more posts on the message board and learning helpful hints and advice. I've found this board to be more helpful and friendly than any other board I've seen so far. Great bunch of people - some of whom I feel like I know already from reading their blogs!